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Coping & living with Parkinson'sUnderstanding Parkinson's diseaseDenial is often a major barrier when the person is first diagnosed with Parkinson's disease, they will often refuse to admit they have the disease and refuse to even tell friends and family particularly if the disease is diagnosed in a younger person. The thought of going from a well individual to someone with a progressive chronic illness such as Parkinson's is often unthinkable and unbearable for them. Why does Parkinson's disease happen? During this early stage it is the psychological issues associated with the disease rather than the motor skills problems which will develop later, which have to be addressed first. Probably the biggest issue which the person will have to come to terms with is the reality that they won't get better but only worse as the disease progresses. They will have to come to terms with and adjust to the fact that the treatment they receive will not make them better but rather help them to maintain functionality in life. Fears for the future The person suffering may refuse point blank to tell friends and even family members of the diagnosis in order to avoid being treated and labelled as an invalid. Many fear that they will be treated differently in society and by those they love; this fear will depend on factors such as the age of the person, the point in their life when the disease was diagnosed and fears of what the future will hold for them. Many people who are diagnosed with this disease will ask themselves questions such as * Will the disease interfere with my career. * Will it interfere with my role as father or husband. * Will it interfere with other relationships such as friends. * How will it affect my independence. * How quickly will the disease progress. * Will I eventually become a total invalid. * How will I manage this disease. Any chronic illness which is progressive by nature will bring about certain fears and worries, this is only natural until the person realises and accepts the form of the disease and how treatment can help to control its advancements. Once they have done this they can regain some control over their life and adapt to the inevitable changes while recognising that at times they may need help from friends and family and they can adapt and live a full life. As the disease progresses it is inevitable that the person will be faced with new fears and concerns and have difficulty in adjusting to the psychological changes that will occur. It is during this stage that people close to the person fully realise the disease and the problems associated with it. Difficulties could include * Increasing and persistent high levels of anxiety. * Withdrawal from social activities. * Intrusive thoughts. * Anger. * Depression. * Hypersensitivity. * Body self absorption. When problems such as these start occurring help and advice should be taken from a therapist or Doctor, this can give the person and their loved ones insight and a better understanding of what is happening. Seeking help and advice isn't a sign of weakness or failure by any means. |
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